ISER-N

Intergenerational Disadvantage and pediatric health disparities in acute respiratory illness and diarrhea - 2025-ongoing

Intergenerational Disadvantage and Pediatric Health Disparities in Acute Respiratory Illness and Diarrhea in the Chitwan Valley Family Study

RATIONALE

Every year, millions of children under the age of five die from diseases that could have been prevented due to lack of basic health services. These diseases disproportionately affect disadvantaged communities, highlighting the glaring inequities in healthcare access within and between countries, including Nepal.

Understanding the underlying social determinants driving these disparities is crucial, especially during early childhood, as this developmental stage significantly impacts long-term health outcomes. Yet, current research lacks detailed socio-demographic and contextual data necessary for a comprehensive analysis. We intend to use the Chitwan Valley Family Study's vast dataset, which offers a wealth of data on home and community dynamics over nearly three decades, to close this gap.

Our study aims to uncover how these factors shape the burden of infectious diseases in early childhood and subsequently influence lifelong health trajectories. Through rigorous analysis of existing data and new measures collected through daily symptom diaries, we seek to inform targeted interventions that mitigate health disparities and promote equitable access to healthcare for vulnerable populations.

OBJECTIVES/RESEARCH QUESTIONS

  1. This study aims to answer the three specific research questions:
    • To estimate associations between intergenerational disadvantage and burden of ARI and diarrhea in children under five years of age (frequency, duration of illness episodes).
    • To estimate associations between (2a) burden of disease and (2b) intergenerational disadvantage and familial responses to illness (healthcare utilization, including barriers to healthcare, debt incurred for health expenditures); and (2c) assess whether intergenerational disadvantage modifies the relationship between burden of disease and familial responses to illness (utilization), and
    • To: (3a) Assess the degree to which intergenerational disadvantage, burden of disease, and utilization outcomes are spatially clustered in the study area (i.e., neighborhood-level clustering of disadvantage and adverse health outcomes); (3b) analyze the effects of place (distance to healthcare, concentration of inter-generational disadvantage) on burden and utilization; and (3c) evaluate whether place modifies associations between burden of disease and/or intergenerational disadvantage on utilization outcomes.
  2. Design and conduct a population-based study of ADRD and other age-associated conditions of adults aged > 50 years and complete a baseline interview and one follow-up interview two years later with these adults and informants/caregivers.
  3. Estimate the prevalence and incidence of ADRD and its primary clinical feature: cognitive impairment; test associations between primary risk factors and ADRD/cognitive impairment and other relevant outcomes (e.g., disability, caregiving needs) at baseline and follow-up.

MAJOR ACTIVITIES:

  1. Government/Ethical approvals
  2. Instrument Design and Finalization
  3. Data Collection:
    • Phase I
      • Baseline data collection with mother
      • Both Children and Mother Anthropometric Measurement
      • Symptom diary data collection for up to 52 weeks
      • Follow up weekly telephone interview for up to 52 weeks
    • Phase II
      • Endline data collection with mother
      • Both Children and Mother Anthropometric Measurement
      • Symptom diary data collection for up to 52 weeks
      • Follow up weekly telephone interview for up to 52 weeks
      • Health Services History Calendar data collection
      • Neighborhood History Calendar data collection
  4. Data Collection Cleaning, and Analysis

METHODOLOGY

Research design

This is quantitative Cohort study. In this study, after an interview to collect baseline information about children’s health and well-being and household characteristics, we will ask parents to record daily information about children’s acute illness symptoms using a simple paper checklist provided by the study. We will ask parents to complete daily checklists for up to 52 weeks. At the end of each week, we will contact parents via phone for a short interview to collect weekly information about symptoms and healthcare utilization in the case of acute illness.

Survey Data Collection

Professional interviewing staff from ISER-N will visit all households identified as potentially eligible based on the Chitwan Valley Family Study household registry. Interviewers will describe the study and confirm the ages of all children residing in the household. Detailed information about the study will be provided to the respondent. Then interviewer will obtain written informed consent from the respondent to collect information on children’s symptoms in weekly follow-up via phone. For each participating child, parents and caregivers will complete a daily paper checklist provided by ISER-N to mark which symptoms of ARI and diarrheal disease, if any, their child experienced that day. Families will receive a text message from ISER-N each day reminding them to complete the symptom diary for each participating child. All parents/caregivers will be contacted via phone each week for 52 weeks for a follow-up interview to collect the information they documented on the daily checklists. All interviews will be conducted using computer-assisted personal interview procedures. The 52-week follow-up period will allow us to capture data throughout the year, regardless of seasonality.

Data cleaning and preparing data sets:

Data cleaning is a routine process that is carried out alongside data collection. Once data collection is complete, the final dataset is compiled. This final dataset is then handed over to investigators for analysis.

EXPECTED OUTCOME

This proposal will combine existing CVFS data with new high-frequency measures of ARI, diarrhea disease, and healthcare utilization among children under five to achieve our long term goal. Our long-term goal is to identify whether children with intergenerational disadvantage are more likely to experience a greater burden of infectious disease, and whether and how this disadvantage conditions short- and long-term implications for their health, particularly immune health, throughout the life course. We anticipate that this study will yield critical insights into the role of intergenerational disadvantage in determining disparities in the burden of ARI and diarrhea in early childhood, and how families are able to respond to acute illness. Strategies that mitigate long-term experiences of disadvantage and improve timely access to trained healthcare providers may provide interventional points to disrupt persistent disparities in under-five health and mortality in South Asia, the United States, and other settings globally.

Data

Data will be available upon completion.

Publications

No publications yet.

CONTACT PERSON

Dr. Dirgha Jibi Ghimire

dirghaiser@outlook.com

📞 +977-56-591054/592407

PROJECT DETAILS

Project Type/Duration

Ongoing/2024-2029

Working District

Chitwan

Thematic Area

Children Health

Collaborators

University of Michigan
Institute for Social and Environmental Research-Nepal

Research Team


Dr. Dirgha J. Ghimire
Research Professor
University of Michigan,
Executive Director of ISER-N
Dr. Emily Elizabeth Treleaven
Research Assistant Professor,
University of Michigan, USA
Dr. Andrew Hashikawa
MD-Clinical Professor,
University of Michigan, USA
Dr. John Kubale
Research Assistant Professor,
University of Michigan, USA
Dr. Grace Noppert
University of Michigan,
USA
Ms. Asmita Sharma
Lecturer,
Bharatpur Hospital Nursing College, Bharatpur, Chitwan
Dr. Yograj Sharma
MD-Consultant Pediatrician,
Bharatpur Hospital, Chitwan

Funding

National Institute of Child Health and Human Development (NICHD)